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INTO-HLH Registry

The INTO-HLH Registry is a patient registry for people diagnosed with hemophagocytic lymphohistiocytosis (HLH) in North America. This is a collaborative effort with Cincinnati Children’s Hospital Medical Centre (CCHMC), Texas Children’s Hospital, the North American Consortium for Histiocytosis (NACHO), and Sobi North America as the industry sponsor. The aim of this Registry is to learn more about HLH, including the impact of this condition, treatment options and associated outcomes. The INTO-HLH Registry will collect information on HLH from patients’ medical records based on their routine clinical care before the onset of the condition and at least five years after the end of treatment. Data collected will improve our understanding of HLH as we aim to achieve better patient outcomes. To learn more visit www.hlhregistry.org.